I was on Alvaiz for 6 months seeing improvements from being at 15 to finally getting into the triple digits of low 100's. Then my employer change insurance carriers and the insurance company told me I had to go on promacta. Platelets dropped, start over on steroids. Now on Cellcept, not working. It has been 8 months seeing no improvement. I have dropped to 60. Doctor asked to change to Doptelet and the insurance denied. Insurance company stated I had to try 2 new medicines first before… read more
When insurance forced us on Promacta and it was not working, doctor asked if we could switch to Doptelet. Insurance carrier denied request stating only can prescribe if platelets are under 30.
That’s so strange since I heard Doptelet was viewed now as the go to for most hematologist, even before Promacta because it doesn’t have the dietary restrictions. We are fighting an insurance battle right now, but with a more obscure medicine (Deratumumab). I totally understand your frustration and hope you find ways to get the meds you need!
That frustration is completely valid — and unfortunately, you're not alone in this experience. What you're describing is called step therapy (sometimes called "fail first"), where insurance companies require patients to try cheaper or preferred medications before approving the one your doctor actually wants to prescribe.